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Anyone have kidney stone tips?

The Wanderer2

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Bruce may be right about the use of a stent. My doctor said I needed the stent because of the location of the stone and size. I guess my stone is extremely hard and didn't respond well to the first lithotripsy. I pissed blood for the first three days after the lithotripsy procedure and pissed out three small pieces during the first week. The 9mm stone only chipped a little and is probably too big to pass. Will find out on the 16th, where we go from here. The removal of the stent is nothing compared to the pain of the stone when its lodged.
 

The Wanderer2

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Believe me, you don't want a kidney stone. Men are more prone than women to getting stones and they seem to run in families. Best prevention is to drink lots of water every day.
 

justason

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This thread scares the crap outa me. I have not had the experience, but based on this lemons and grapefruit is now a larger part of my diet.

Sorry you're going thru this @Bruce , I feel for you....Hope it doesn't hinder hunting season too negatively.

(not a good time to watch the Deadwood series)....long-shot folks know what I'm referring to.
 

leeatmg

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@Bruce Sorry to join this late, but I went through that whole thing a year and a half ago. Similar symptoms - pain so bad I had projectile vomiting then dry heaving, etc. - absolutely the worst pain I've ever been in and little to no relief. Even the good drugs just take the edge off.

First instance landed me in the ER on a Dilaudid drip, which made the pain a little less and I was pretty out of it. Next morning they had to go in the front door via catheter (laser lithotripsy) to remove it as it was 9mm and stuck in the ureter between the kidney and bladder. They broke it up, removed it, and inserted a stent which I kept for a month. There was another stone waiting, same size.

A month later, they removed the stent and did the shock wave treatment, which did not work and required a second stent for another four weeks. This time, the stent was unbearably painful - could not walk more than five feet without extreme pain.

Four weeks after placing it, they removed the second stent, did the laser procedure again, removed the pieces, and placed a third stent. You guessed it, four weeks and tons of pain later, the third stent was removed and it was all over.

All three stents were removed at he doctor's office, fully awake, with an audience. Talk about uncomfortable...the removal device looks like a large gun with a video screen on it, and involves a retractable metal claw. But it doesn't really hurt that much, it's just a very odd uncomfortable sensation and a little embarrassing. Nothing compared to the pain some feel from the stent (not everyone feels pain from stents, and my first stent was barely noticeable.)

Why am I telling you all this? The stent can be very painful, but may be necessary due to the location of the stone and the extent of the damage. I was told mine were necessary because the stone had inflamed the ureter and without it, the ureter might close up. But push back until you are comfortable with the risks and rewards of using one, if you end up needing it. They can be painful, so do some homework and ask lots of questions of your urologist.

As for the "after" part...the main triggers of stones are dehydration and high intake of protein and nuts in the absence of other foods. So if you like to have a good long drinking weekend, for goodness sake drink lots and lots and lots of water along with it. And if you aren't drinking alcohol, drink lots and lots and lots of water anyway.

In my case, there was an additional loss - the first stone was removed the first weekend of June, and the last stent came out just before Labor Day. Lost a whole boating season. Insult to injury. Good luck with your recovery. Hope it's quick and as painless as possible.
 

Bruce

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Touching wood while typing this but I believe my right kidney has run out of stones. My left only had one. 5 stones moved from my right kidney to my bladder over 12 days at least one made it all the way out. Three days after the stones passed the kidney pain decreased to a level where I could sleep without pain killers.
 

Wayloncle

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This thread makes my wiener hurt! I've always heard they are very painful and seeing one under a microscope I can see why!
 

jcyamahariders wife

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Yeah the office visit where they removed the stent didn't hurt but they advised not to return to work afterwards and it was a good thing later on I knew why. I was in extreme pain for about 2 hours. Not sure if guys have the same experience or not. Wow it is crazy to read many people going through the same experience. It's pure torture !
 

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Bruce, make sure the urologist does a stone composition analysis to find out what the stone is made of, the most common is calcium oxalate. Most urologist aren't much interested in preventing stones, so you need to find a nephrologist (kidney specialist), especially one with an interest in kidney stones. See the nephrologist when you are healed up and back to baseline. The doctor should do some blood tests and a maybe even a 24 hour urine collection for what is called a super-saturation, it will tell the nephrologist anything that can be done to lower your risk of forming future stones. You want to do these tests when your back to eating and drinking your normal diet, not when you are passing a stone. PM me with any questions.

For the rest of you, the best way to prevent kidney stones is to bring lots of fluids (water is best), low protein and normal calcium diet.
 

Bruce

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I have been thinking that a rough water crossing to Bimini should be just as effective as lithotripsy, way more rewarding and less expensive. Anyone think they can talk their insurance company into footing the bill for Bimini 2016?
 

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I feel for you @Bruce and everyone with the pain of kidney stones. I have been down the road myself, but not one ounce of pain from my current stone. I have a 4mm x 7mm stone that is lodged in the lower pole of my kidney. I have had it for years and not one spec of pain from it. But it caused and continues to cause me, a great deal of aggravation. As a pilot, the FAA grounds anyone that has a kidney stone, and any pilot knowing he has one, is passing one, or has passed one, is under obligation to report it to the FAA via his medical self declaration. So when I had a CT scan due to blood in the urine, the radiologist that read the scan, noted a left lower pole stone. My blood in the urine was from heavy lifting and the kidneys will routinely excrete blood when you strain. But my MD wanted to rule out bladder cancer so a scan was ordered, and a stone discovered. I was off from flying (grounded) for over a month trying to get answers. I had plenty of experts at my disposal, and most of the urologists wanted to do lithotripsy. But my question to them was this...you break up a big stone and what happens to all the pieces? They all said that they would flush it with an IV and I would pass the fragments. When I told them I needed a 100% guarantee that every last grain of sand would pass from this, none would give it. So I started trying to get odds as to how best to handle this. More experts. If you have a stone in your kidney, and it isn't changing in shape/size/position, all I can say is leave it alone. Having a stone lodged in one fundilum inside the kidney is not an issue if it won't start to break up. I have had mine for about 8 years, totally asymptomatic, same size/shape/position, and not made another stone. I tried the lemon flushes, homeopathic remedies, and even considered surgery to remove the stone intact. But so far, it is staying put and not changing. I have to have a complete metabolic panel (blood analysis), urinalysis, KUB (X-rays), visit with the Urologist, and take a letter from him to my flight physician for my medical certificate, and annually to show the feds that I am not in jeopardy of incapacitation.

So if you have a large stone that is lodged, consider keeping it, and don't believe them about that "no pain, no gain" crap! Another few notes of interest...you may feel a stone in the kidney, but you won't have pain from it. There are not many and not the same type of nerve endings in there, as there are just an RCH outside of it, in the ureter, and one down. The bladder also won't give you pain from a stone that is suspended in it...but just and RCH outside and OUCH! I feel for all of you guys and hope mine never moves.
 
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